I was lucky enough to have been diagnosed with Turner’s syndrome as a. newborn. There are a lot of other TS women and girls who haven’t received their diagnosis until later in life. This can be detrimental to your health as underlying problems with the kidney, heart etc go unnoticed and untreated.
Despite having known all my life and having paid the multiple hospital visits over the years I never really had much of an opportunity to meet others who shared my experiences.
In 2013, I decided that I wanted to do what I could to help other women and girls who might feel alone and need a some support away from doctor’s waiting rooms and large conferences. I set up a blog where I could share my TS story and give others the opportunity to tell their own in their own words.
My first novel had just been released that September and whilst I was thrilled to be living a lifelong dream, I still had a lot of passion for my little blog.
Soon after, RAGDOLLS UK, was established. The blog grew and to this day I am proud of all those across the UK who have joined our story, continue to support and make every minute spent continuing to reach out to TS girls, worth it.
If you haven’t heard of Turner’s syndrome, that’s no surprise. There are still so many, including medical professionals, who aren’t fully aware of it. If you want more info head on over to the link above and immerse yourself in the stories of some of the most amazing, inspirational women I’ve ever met.
